KESEDARAN DAN PENGETAHUAN PIHAK BERKEPENTINGAN TERHADAP GENETIK PERUBATAN DI LEMBAH KLANG (STAKEHOLDERS’ AWARENESS AND KNOWLEDGE TOWARD MEDICAL GENETICS IN THE KLANG VALLEY)
Abstract
Abstrak
Genetik perubatan merupakan satu bidang baharu di Malaysia. Ia merujuk kepada aplikasi genetik dalam penyelidikan perubatan bertujuan untuk mengenal pasti, mencegah, dan merawat penyakit berkaitan genetik. Perkembangan bidang ini bergantung kepada penerimaan yang baik oleh masyarakat. Berdasarkan kepada teori pembuat keputusan, seseorang individu akan membentuk sikap terhadap sesuatu teknologi apabila mereka memperolehi maklumat yang berkaitan. Justeru itu, tujuan kajian ini adalah untuk mengenal pasti tahap kesedaran dan pengetahuan pihak berkepentingan Malaysia di Lembah Klang, dan membandingkan tahap kesedaran dan pengetahuan merentasi kumpulan pihak berkepentingan. Borang soal selidik yang telah diuji kesahan telah diedarkan kepada 421 orang responden yang terdiri daripada dua kumpulan pihak berkepentingan: penyedia penjagaan kesihatan (n = 221) dan pesakit atau keluarga mereka (n = 200) di kawasan Lembah Klang. Keseluruhan, hasil kajian menunjukkan bahawa tahap kesedaran pihak berkepentingan adalah sederhana (nilai skor min 4.64) dan tahap pengetahuan adalah tinggi (nilai skor min 6.70). Ujian ANOVA satu hala menunjukkan terdapat perbezaan yang signifikan bagi tahap kesedaran dan pengetahuan merentasi kumpulan pihak berkepentingan.
Kata Kunci: Kesedaran, pengetahuan, pihak berkepentingan, genetik perubatan, Malaysia
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Abstract
Medical genetics is a new field in Malaysia. It refers to the application of genetics in a medical context that involves the diagnosis, prevention and treatment of genetic diseases. The development of this area depends heavily on public acceptance. According to one particular theory of decision making, an individual will form attitudes about technologies after they have acquired relevant information. Therefore, the purpose of the study was to examine the level of awareness and knowledge on the part of Malaysian stakeholders in the Klang Valley, and to analyse the level of awareness and knowledge across the stakeholder groups. Validated questionnaires were distributed to 421 respondents consisting of two stakeholder groups: healthcare providers (n = 221) and patients or their families (n = 200) in the Klang Valley region. Overall, the results showed that the stakeholders’ level of awareness was moderate (with a mean score of 4.64) while their level of knowledge was high (with a mean score of 6.70). One-way ANOVA analysis showed that there is a significant difference in the level of awareness and knowledge across the stakeholder groups.
Keywords: Awareness, knowledge, stakeholders, medical genetics, MalaysiaÂ
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